Tuesday, 6 August 2013

Launch of The Butterfly Network Here2Help

Well its been a long time coming but we are finally here!! Still a few things to put in place and we are waiting on our number but dont see why we cant get a head start :)

 Our new Logo kindly donated by waynelemosdesign

Let me show you around our new website:
www.thebutterflynetworkhere2help.com

You may notice especially if your viewing via a Pc or Laptop that we have pages and then sub pages... This allows us to give a better variety of information.

So under Welcome we also have Meet Us and Donate To Help and so on...

Let me explain a little about what and who we are...

As a team we want to welcome each and every one of you to The Butterfly Network Here 2 Help. Its been over a year in the making & planning. We can't put into words how it feels to have finally made our launch and to be helping in what we feel are the right places.

The Butterfly Network Here 2 Help, is a sister organization to The Official Butterfly Network which is founded by an amazing friend Kristina Wyatt. We are an unregistered foundation at present, waiting on our HMRC number to enable us to legally fund raise and move forward in assisting people and families around the world with Epidermolysis Bullosa. In time we want to claim full charity status but until that time, it's business as usual. Help us to help others!

We are a small team at present and we specialize in offering small donations IE: petrol to attend Eb clinics & cheer-up gifts for people in the Eb community. We are creating a Teens Eb Club, where we will have fabulous weekend breaks around the country (An example ~ London's West End with overnight stay at a hotel & show or museum) for member plus one carer. Our our biggest plan is to host the United Kingdom's very first Annual EB Camp, which we aim to hold September 2014, location & date TBA. Watch this space for updates and applications for Counselors.

The bigger charities ultimately focus on research for treatment and a cure for this "Worst condition you never heard of" which is desperately needed. But we felt compelled to do something for the here and now! And instead of just asking for donations or people to hold fund raisers in aid of us, we started selling Homemade Cards a while ago to raise funds.
These stunning cards will continue to be available via our Facebook page https://www.facebook.com/TheButterflyNetworkHere2Help and the blog http://thebutterflynetworkhere2help.blogspot.co.uk/ Some amazing gifts will also be added along with the cards very soon.

We manage an online forum Epidermolysis Bullosa Lounge which is worldwide and now home to over 1200 members from around the world. The Lounge is a place where people come together for advice, support and to just be a part of an amazing community. We have a large number of supporters that are with us to assist where possible.
On top of this new venture, we also have our full time jobs & families etc. So please bare with us for responses to emails.

Fundraising with GoGetFunding

Please feel free to contact us at anytime, share our website and donate or purchase our cards to help others in need.
Have a wonderful day and look forward to sharing this amazing journey with you all

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